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Email Support Groups
Following is a list of some of the email support groups available for those who have lost a baby to SIDS. If you wish to join you can enter your email address in the appropriate box and click the "Join Now" button and it will take you to Yahoo Groups site to complete your subscription to the group you've selected. I don't know where I would be if I hadn't found the sidslist the same night of Jacob's funeral. I no longer felt like I was alone in the world. I had the support and guidance of others who had walked in my shoes.. and most importantly.. SURVIVED it. That was something I never thought I would do ... survive. The others in the email group helped me realize that I could live, that I could even find happiness again. It was through the sidslist that I first got the ideas in my head to start a site for all of the families who had lost a baby to SIDS. It started out as such a simple thing, I just wanted to have a home for all of the pictures and stories of the people in the sidslist, but SIDS Families has grown to be so much more than that. I will be forever grateful to the members who were there at the time who encouraged me, and to all those who continue to encourage me. I think the best thing about the email support groups is the fact that it's a daily thing; a person doesn't have to wait a month to talk to others again. I hope that you too can find a group to suit your support needs.
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Find the group at the following URL: http://groups.yahoo.com/group/sidsfamilies/
This is the main group which accompanies the SIDS Families website. The members of this group are not counselors or other professionals, (in fact, they're not allowed!), the group members all grieving family members who have lost a child to a sudden infant death. This particular group is a general grief support group for ANY adult family member who is grieving a SIDS death, this group isn't appropriate for children. Through this group you will get one-on-one support from the other members of the group.
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Find the group at the following URL: http://groups.yahoo.com/group/sidsdads/
Dads are often the "Forgotten Grievers". People ask the dad how the mom is doing, or how their other children are doing, maybe even how his mom took the news, but often people neglect to consider the father, the heartbroken daddy who longs to hold his son or daughter again. Men typically grieve differently than women, and are often silent, keeping it all to themselves, but just because they don't show it doesn't mean they don't feel it! This group is JUST for dads. It's dads supporting other dads who have lost a child to SIDS.
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Find the group at the following URL: http://groups.yahoo.com/group/sidsgrandparents/
Grandparents will often have an especially difficult time when their grandchild dies, essentially, their grief is doubled. They've lost their grandchild, and they've also lost their own child in a sense because the baby's parent will never be the same, they also feel almost useless because they cannot just go get a bandage and "fix" things for their child or kiss it and make it all better. Although feeling overwhelmed with their own pain, they're often expected to be a rock for the family. Many a SIDS parent have called their mommies and daddies hoping they can do something to help. Not wanting to burden the rest of the family with their pain, grieving grandparents are left on their own, feeling lost and alone. Some even question why they would hurt, which of course only makes it worse. Grandparents have special concerns and emotions after the loss of a grandchild, that they don't always feel free to discuss with their children. This group is solely for grandparents, a place for them to come together and share what it's like to lose a baby to SIDS from the perspective of a grandparent.
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Find the group at the following URL: http://groups.yahoo.com/group/sidssiblings/
A meeting place for siblings and other young people who have lost a baby they loved to SIDS. Support is usually available to SIDS parents and other adults, but often nothing is offered for the children who are confused and end up quietly grieving by themselves, afraid to mention how they feel for fear of upsetting someone. This group offers them a place to get together and discuss what they've experienced and possibly help one another in the grieving process. It's moderated by SIDS moms.
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Find the group at the following URL: http://groups.yahoo.com/group/babiesaftersids/
This group is for SIDS moms who are trying to have another baby, for SIDS moms who are already expecting, and for those who have had a subsequent baby after losing a baby to SIDS. This group freely discusses pregnancy, birth and the joys and fears of having a baby again so if you're only trying to conceive and aren't up to hearing constant chatter from others who are pregnant or have had their baby, it may not be helpful to join this particular group.
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Find the group at the following URL: http://groups.yahoo.com/group/sidstwinlesstwins/
This group is for those families who had twins, triplets or other multiples and then lost one to SIDS. Grieving Twin/Triplet families may find it difficult being a mixed group where often people act as though they're lucky because they had a "spare", minimizing the loss of their baby simply because they had another baby at the time. Often parents who lost a singleton to SIDS simply don't understand how painful it is for twin parents, parents who have no break between one baby and the next, they have to learn to immediately cope with their fears, where parents of singletons typically have a space of time to adjust to the idea of having another baby in the home again, a time where they can try and deal with their fears, Twin/Triplet parents don't have this "luxury" if you could call it that, they already have a baby in the home who still needs their love and attention. Twin parents also miss out on the twin experience, all the stares and comments from others when they go out in public, people no longer stop them or make comments or ask questions about the twins, and this is also something that can be difficult to deal with. This group is a great place to be able to mourn and remember your angel twin, while also celebrating the milestones of your earth twin, a group where twin and triple parents will be completely understood.
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Find the group at the following URL: http://groups.yahoo.com/group/sids-aunts/
Aunts often feel like they aren't allowed to grieve, like their feelings aren't important, or that they shouldn't feel as grief-stricken as they do. It's been said that the death of a baby will affect at least 100 people, so it seems ridiculous that there is any sort of a struggle over who has a "right" to grieve and who doesn't, but in mixed groups an aunt's feelings are often disregarded, and they're made to feel like they couldn't possibly hurt as much as grieving mother, for instance. Nobody can know the pain of someone else, and it's unfair that aunts be made to feel they shouldn't miss their niece or nephew. This group was started by a SIDS aunt who found she gained the most support by talking to others in the same position as herself. If you're a SIDS aunt, you may find support in this group made up of only other aunts.
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Find the group at the following URL: http://groups.yahoo.com/group/momsttc/
TTC stands for Trying to Conceive, and this group, run by SIDS mom Amy (Layden's momma) is for moms who have lost a baby to SIDS or SUDC and are either considering, or actively trying to conceive another child. Get help from others and feel free to discuss various methods of improving your chances of conception. Please feel free to join and share your story as well as your hope for another baby.
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