http://www.sidsfamilies.com/blog/index.php http://www.sidsfamilies.com/blog/index.php?entry=entry110331-171734
Also today I added buttons to the template for nursery pages to make it easier for folks to share a page via Facebook, Twitter and such.

The following little ones now have a page in the nursery, on pages 159, 160, and some are on page 161.


Eden Joshua Banda
Sahiem Tawfiq Jackson
Addyson Grace Judy Maire
Daniel Paul K. Trozzo
Michael Elmer Allen
Athena Lillian Miller-Burnett
William Lucas Grant
Justin Luke Roberts
Brayden Christopher Moon
Myles
Christopher Lee Dobbs
Ilyssa Ranae Carpenter
Quinton DeJaun Turner
Ashton James
Sullivan Conner Reese
Bailey Grace Williams
William Dallas
Patrick Michael Devin
Kendell Lee Carter
Emily Grace Farley
Julia Rose Gerle
Elijah David Lopez
Levi Walker
Shirlene Kay Burns
Maylyn Trenee Henderson
Rowan Keller
Mackenzie Jean Taylor
Gavin Cole
Hailey Lynn Weiner
Dakota Alexzander Nasset Wines
Delano Deon Balark
Christopher Lawrence Pickett
Hayden Joshua-Austin Lewis
Skylar Lyn Sowders
Taylor Keith Nance


Information added or updated:
Maxx William Albury
Dominic James Miller
Carlie Eileen Shelton

]]> http://www.sidsfamilies.com/blog/index.php?entry=entry101207-231144
Here are the pages I've worked on this evening:

Updated:
Dylan Michael Tate

Added:
Antonial Jamal Beale Jr
Sydney Lin
Larry Eugene Holloman
Abigail Kathleen
Kimani Christopher Collier
Noah Michael Leibacher
Archer Elijah Evans
Landon David Gunter
Journee Jai Hawkins
Kylee Elizabeth Mayall
Aloysious Casper
Isaiah Lee Sims
Thomas Jeremy Wolfe
Aiden Brice Smith
Travis Ross Burt
Amelia Nancy Field
Glen Thomas McIntosh
Tanner Joseph Crawford
Kyla Hope Minor-Kaiser
Logan Elijah Nitzsche
Darrell Marquis Coleman
Azariah Zaire Murphy
Courtney Ann Sweeney
Shelby Olivia Brown
Brian Joesph Thiessen
Colby Barnard Shutt
Bryson Allen McKenney
Noah Michael Jordan
Shyanne Elizabeth White
Charlie Elijah White
Amare Kanye McCoy
Eric Cody Dewayne Morrison
Aubrey Ann Thompson]]> http://www.sidsfamilies.com/blog/index.php?entry=entry101207-155535

Updated:
Trinity Felicia Sloan

Added:
Cadyn Lane Trujillo
Jacob Allen Dailey-Valdez
Sergio Alexander
Prince Maximus Dixon
Adam Neil Michael
Nathyn Gerald-Lee Moore
Maxx William Albury
Blake Thomas Dittler
Haidin Leo
Mister-Warren Jerome Rasheed Bruce
Corydon Benjamin Seaboldt
Karen Aspyn-Snow Aspyn
Gunnar Kiar Engel]]> http://www.sidsfamilies.com/blog/index.php?entry=entry101125-174952
Daniel Ray Morrow Jr.
Ethan Edinborough Oquendo
Kaylynn Elizabeth Plourde
Brian Joseph Sargent
Christen Ruth Hansen
Derrick Jay Allison
Michael Anthony Haggerty
Brynlee Joy
Lindsey Brooke Jewell
Christopher Isaac Kissick
Branden Lee Lafayette
Kegan Dean Sylvester
Luke Nathaniel Anderson
William Edward Land Jr.
Brooklyn Rayne Griffith-Bolger
Brady Spenser Jackson
Savanah Marie Whitney
James Allen Collett
Abel Everardo
Bella Cypress Turner
Joy Gauthier
Tucker Benjamin Mason
Isabella Marie Silva
Jesse Lee Cole Calloway
Justin Kent Nelson
Chaston Manuel Clark
Phoenix William-Michael Nowlin
Ashton Fredrick
Braylin Dean Norton
Adeline Elizebeth Miner
]]> http://www.sidsfamilies.com/blog/index.php?entry=entry101125-055403
And on that note, I'm going to go get some sleep before the sunrise makes me want to just stay up.]]> http://www.sidsfamilies.com/blog/index.php?entry=entry101125-055146
The following babies were added to the nursery in the wee hours:

Angel Jose Aranda
Joseph Antonio Woodbury
Gannon Jacob Greenlee
Tayler Colt McCannon
Amanda Marie
Gabriel Jess Young
Tyler Dale Smith
Amani Naki
Drake Edward Frazier
Malachi Salvatore Pualani Leoncini
Traven Owen Brown
Lestate Chapman
Lucas Damian Bortz
Shelby Louise Steedsman
Layton Christopher
Alexzander Dale Bolen
Riley Alexander Paquette
Eva Alicia Martinez
Tyson Bailey
Martin Jack Lardino
Alivia Gabrielle Johnson
Colleen Caitlan Walker
Charlie Jordan Matthews
Kathryn Brooke
Jackilynn Rain Stoermer
Peyton Marie Hodge
Braydon Leroy
Trinity Skye Ladd
Kylie Jean Landaker
Jay Roy Blanchard
Hosea Nathan Oates
Rita Carol-Anne Kimsey
Jam Andrew Nilo Elepante
Tyler-Wayne Jacob
Blakeney Ruby
Kendall Ruby
KyAmberlie Ciera
Lillian Mae Tolman
Kamryn Olivia Cook
Xander Rylan Means
Katlyn Marie Jordan
Danielle Levell Matz]]> http://www.sidsfamilies.com/blog/index.php?entry=entry101124-232904
Anyway.. I have a lot of time consuming pain in the patootie deleting in my future, please bear with me as I get this fixed.]]> http://www.sidsfamilies.com/blog/index.php?entry=entry101124-232549 really appreciate the spell-checked entries which make this go so much faster! Here are the little ones added today:

Leilah Irene
Alexiana Marie Crespo
Ethan Michael Seach
Payton Mary Palmer
Jennifer Rebekah Barrows
Ava Elizabeth Brown
Terren James Dixon
Michael Caldwell
Dylan Rose Heath Vecchiarelli-McCreary
Willow Jenny Meester
Zielig Edwin Moench-Hughbanks
Mandalynne Alicia Julson
Jasmine Nicole Gregory
Robert Sean Donnelly Julson
Colin Michael McGaffin
Elijah Ryan Hart
Kylee Michele German
Lexington Love
Trinity Felicia Sloan
Noah Michael
William Lamon Thompson
Dylan Michael Tate
Abbigail Faith Harrison
Michael Alexander Saunders
Kayden James Aginas
Kylie Marie Heise
Bradley Michael Behm
Ryan Dean Jr Babcock
Mackenzie Sandra Morefield
Dakota Nims Lewallyn
Troy Shane Singleton Jr. III
Gabriel Patrick Young
Dustin Brock Main
Caleb Benjamin Henshaw
Blake Adam
Torrance Kelli Nichols
Henry Christopher Bishop
Fatima Rose Bishop-Burk
Fatima Rose Bishop Burk
Kevin Lee Williams III
Wyatt Gabriel Lucio
Patrick Jesse Avent
Carson Lee Hallett
Brittany Morgan Paris
Tonie Lee Sims
Luis Miguel Quintana
Lestat Austin Christapher Gandy
Brandon James Thompson
Sean William Johnson
Kylan Christopher Bordelon
Matthew Joseph Sabo
Ruben Angel Franciso
Vincent William Green
Lynne Neveah McKee
Jamie Jacqueline Laforet
Anthony Ray Barry
Ian Joann
Koen Michael Hanson

Updated:
Trenton James Walker McGovern-Chapman]]> http://www.sidsfamilies.com/blog/index.php?entry=entry101123-150338
Breena Makayla Woodward
Michael Leland Smith
Lilyanna Grayce Brown
Keaton Brennan-Blayze McQueen
Jayden Latham
Mason William Michael Castle
Christopher Michael Miller
Nelson Alexander Booth-Almeida
Maribel Yoselin Pineda
Nathaniel Thompson
Angelene Lee Simmons
Carol Lee Funk
Noah Anthony Castorena
Alena Breann Garcia
John Jacob Uram
Rylie Grayce
Dakota Michael Elliott
Kaylee Nicole Gillett
William Allen Linkous
Savannah Jean McMurrer
Xander Alan West
Megan Riley Minnick
Isabella Rachelle
Scotty Charles O'Neill II
Skylar James Hummel
Reginald Robert Wilson
Darren James Bowman
Arabella Dawn Thomas
Cameron Rees Wang
Justin Kaleb Raheem De Leon]]> http://www.sidsfamilies.com/blog/index.php?entry=entry101122-225017
Anyway, aside from that, there are some other updates - the Holiday of Angels is well underway. This is the first year for a few new aspects of the gift exchange including a card exchange, and a "receive only" option for newcomers and a "give only" option for those who don't want a gift in return.

I managed to get a few new nursery pages added tonight. I'm very, very far behind in updates to the nursery but hope to get them completely caught up soon. For the time being, here's a list of the babies added today, in no particular order:

Kendal Nicole Varni
Myleigh Kathryn O'Neill
Jazzelyn Ashley Braga
Kenslee Kourtlynn
Lamonte Eliot Brisbon
Maya Elizabeth Maxwell
Kody Lane Cobb
Colby James Shutt
Eve Destiny
Tyler Evan Adams
Mariah Ann
Madison Grace
Robert Brian Hendricks Jr
Beckett Donald Elder
Alexis May-Lynn Omarra
Brayden Christian
Shelby Miriam Ransom
Jaxan Asher DiDomenico

That's all I have to share for now. I hope that although I'm not as actively maintaining the site as I once was, that what was built continues to help those who are hurting. Speaking from my own experience, the loss of a child isn't something you get over, it's more like something you somehow survive and get through, and bit by bit you learn to live and even find joy in life again. With the holidays fast approaching, I know that the ache of missing our little ones can sting even more. My heart goes out to everyone who's hurting. ]]> http://www.sidsfamilies.com/blog/index.php?entry=entry101007-023118
http://jacob.sidsfamilies.com/index.php?sec=family
]]> http://www.sidsfamilies.com/blog/index.php?entry=entry101004-153519 http://www.sidsfamilies.com/index.php?sec=hoa
]]> http://www.sidsfamilies.com/blog/index.php?entry=entry100926-140903
The main HOA page is here: http://www.sidsfamilies.com/index.php?sec=hoa

There are 4 forms this year though, so please choose the one(s) for the parts you'd like to participate in.

• 1 •There is a list for those who want to ONLY send a gift without receiving one in return.
• 2 •There is a list for newcomers to the Holiday of Angels. If you've never participated before, you can choose to only receive a gift for your first year. It's not necessarily for those who only just lost their baby this year, but anyone who hasn't previously participated in the gift exchange. Newcomers often end up being the people who don't send a gift so this way it eases people into the gift exchange their first year if they aren't certain they can commit to sending a gift too.
• 3 •There is a form for the new card exchange for SIDS families.
• 4 •And finally there is the same basic form that's been used since 2001 for the gift exchange where you should expect to both send and receive a gift in memory of your baby.


Due to other commitments this year I don't have a lot of time to devote to the Holiday of Angels so Catherine is going to manage it for me once I get everybody's matches sent out to them. You can reach her through the address hoahelp AT sidsfamilies.com.]]> http://www.sidsfamilies.com/blog/index.php?entry=entry100228-144254
Edward continued to have issues breathing, and they'd also noticed on an x-ray that he had a larger than average heart too. He's been bodybuilding for three years or so and had read an article that bodybuilders often have bigger hearts, so he didn't think that was a really big deal. He kept having a harder and harder time breathing though, he'd even wake up in the middle of the night gasping for air. He had an awful time getting going in the morning, but by evening he'd feel better. He had been overweight but had lost it all, it was the beginning of his bodybuilding days, and he had learned how important water is, so he was always drinking water, like, A LOT of water. It was nothing for him to drink a gallon of water over the course of a day. When we went to a movie over Christmas and he went out 3 times to go to the washroom, I told him that wasn't normal. He said it was from his water consumption but I pointed out if his body needed it, his body would be using it.

Well anyway the older doctor at the clinic got the results of Edward's test, it was about a month later by then, and he said that he couldn't see how the other doctor had said "pulmonary fibrosis" because he wasn't seeing that from the results he was looking at. He ordered a CT scan, an echocardiogram and also referred Edward on to a respirologist. I think the CT was done in November, thereabouts anyway.

In early December, Edward's breathing was so bad, we had to go to the ER again. Normally we'll wait at least 3-4 hours in an ER before we're done and home, but that day we didn't even warm up our seats in the waiting room and they called him in. Normally after a person is called in, they still wait an hour or two, and first the nurse will come, then residents and interns and students and researchers and so on (it's a teaching hospital), and then finally the doctor will come in, quite some time later. Not that day. We were in so fast, and Edward barely had his gown on and the doctor was there. She was asking him questions and he was answering then she asked him if he was otherwise healthy. He said yes, I frowned at him and said, "No." Then she asked him why his wife said no, so he went on to explain about the pulmonary fibrosis and everything he'd been going through. She went off to check for the CT scan results over the computer, and came RIGHT back, poked her head in and said that the test results did NOT support a finding of Pulmonary Fibrosis. She also explained that on an xray things will look one way, but the CT scan is a much clearer picture, and that he definitely did not have pulmonary fibrosis. She said she thought we'd want to know as soon as possible. We both cried, again, but happy tears this time, such a weight was lifted off our shoulders.

She ordered an x-ray for Edward in the ER and said she wondered if he was brewing a pneumonia again because she thought she saw fluid in his lungs, and again noted that his heart was enlarged. It had been early in the morning when we'd gone in, and Edward was feeling better a couple hours later, plus they'd given him inhalers again which helped him breathe easier. She was glad he was feeling better, but was concerned about what was going on so she ordered an echo herself, which was less than 2 weeks away whereas the one the other doctor had ordered, they hadn't even called to make the appointment yet.

So Christmas is almost upon us, Edward's echo test was a few days before Christmas, then we were off to Toronto to spend Christmas with his family. Some of his family members had come over from France for the holidays, (most of his family is in Europe as he was born in Portugal), and everyone was so happy and relieved that Edward was "okay". No more concerns about pulmonary fibrosis.

So the holidays came and went, we hadn't heard anything about the echo results. Edward tried to get a hold of the doctor without success. He found out she didn't have a practice, she only worked in the ER, and he had a hard time catching her. He did one day though, finally, January 21st. She hadn't received the results yet, and looked it up on the computer. She was quite upset because she SHOULD have received the results by then, but hadn't. She told Edward that it didn't look good. He had been having a really really hard time for the past few days, and she told him he'd better go to the ER.

Jesse drove him down to the ER. I had to stay with kiddos and we had a family counseling session that day as well. My mom came over after work to help with kids and Jesse came and picked me up and took me down to the ER to be with Edward. That's when I found out what was really going on.

What was wrong with Edward wasn't his lungs at all, the breathing issues were just a symptom. He had congestive heart failure. They said a heart pumps out about 60% of the volume with each beat, his only pumped out 26%. His heart was doing its best, but his body had been slowly filling with fluid, including his lungs. THAT was why he was constantly going to the washroom. THAT was why he had such an awful time in the morning, because the fluid would pool overnight as he was lying in bed. THAT was why his heart was enlarged. THAT was why he had such a hard time breathing, he was drowning in fluid. They admitted him, and the one doctor actually asked him for permission to write a paper on him (although he'd remain anonymous) because he's such an unusual case. She said it may even be published in a medical journal. Ever the kidder, Edward gave his consent but wondered about getting a copy. He's only 36 years old. Super healthy, worked out almost daily, lifts insane amounts of weight at the gym, normally so in control.. and ohmigosh it was hard to see him hooked up to monitors, so weak he couldn't even get out of bed sometimes. Simply shaving left him winded. The one doctor said he was on borrowed time. Another said he wasn't out of the woods yet. His parents and sister came from Toronto to see him in the hospital and there were just so many of us that Edward came down to the family room to visit instead of visiting in his room. He was so weak though. I saw in his eyes how wore out he was getting, so I left with the kids. He loved to see us all, but it really left him weak. I think it was the Saturday after he was admitted that I was there when a pastor friend of his went to see him, and another lovely couple he knew from the Businessmen's Fellowship as well. The couple arrived after I had left, but those three laid hands on Edward and prayed for him. He had not been doing well at all, the doctor had said he was going downhill. They talked about him possibly being in there for up to a month. Edward just wanted to come home and be normal.

After the three prayed over him, he started feeling stronger. In a few more days, he was home. They said that he wasn't out of the woods, but he was well enough to come home. He's on a no salt diet. He already ate like that, so it wasn't much of a change really, except that now when I cook I don't use salt at all and just let people salt their own food if they need to. He can't even have baking soda or baking powder though, so I've been trying to bake things that don't have either of those things. He has no restrictions for sugar or fat or anything, just the salt. He's not usually much for sweets anyway, but I think he felt a bit more normal when he could enjoy a brownie.

He's been back down to the ER once since then and they just checked him out and sent him home again, they wanted to keep him as a precaution but he really didn't want to stay and the next morning he already had an appointment at the hospital anyway, so they let him go home. The next day they gave him a cpap machine and showed him how to use it. The cardiologist thought Edward had sleep apnea and had ordered a sleep clinic. He thought that sleep apnea was the root of the problem with his heart. He said to think of his heart like a car battery, and said there are only so many times you can jump a battery before it's done. He said that the heart stops during apnea and then starts again and that it's really hard on the heart.

Edward's had a goatee since I think 2000. I'm not sure why he started it, but I was glad. He and Jacob looked so much alike, and without the goatee, every time I would look at Edward, I would see Jacob in him. He would also see his son when he looked in the mirror. Plus, he just liked the goatee. Well, that had to come off in order for the cpap machine mask to get a proper fit. He slept with it for several nights then got the call for his sleep study the night of Chelsea's birthday, February 25th. He really didn't want to go, at all. He was glad to be done with the machine for the time being though because they said he had to be off it for 4-5 nights prior to the sleep study. He let his scruff grow in a bit too. He dreaded going, and asked a lot of people about it too, friends who'd also had a sleep study that is. I think they reassured him. He mentioned canceling but I told him to go, because they were only going to tell him he didn't have sleep apnea and didn't need a cpap machine. That's what I was believing and praying for.

Well, Edward gets to grow his goatee again. He doesn't have sleep apnea. They said he does get a bit oxygen deprived when he sleeps on his back, so they talked about him getting some funky pillow or something that would wedge in behind him and keep him on his side. He's usually on his side anyway, so it's not much of an issue.

He hasn't seen the respirologist yet, it was put on hold until he'd had the sleep study. I'm not sure if they'll still go ahead with him seeing the respirologist or not at this point. He has a cardiologist though which we're thankful for because now someone is following what's going on with him. They said if he hadn't lost the weight and gotten so healthy, he would have dropped dead last summer when he first noticed it really becoming bothersome. They said it was his sheer strength and willpower that kept him going for as long as he did. He was super bummed with the doctor told him no resistance training (weight lifting). He told him he could do cardio or yoga. Edward joked with the girls about getting some Lululemon yoga pants and wearing those. I think they all cringed. Edward has been moping around the house though, I see him constantly looking in the mirror, watching his muscles shrink. I suggested he ask the doctor about getting back to weight lifting, so he did. He was positively thrilled when the doctor said he could do LIGHT weight lifting. I chuckled at that, because "light" to Edward, is not necessarily the "light" the doctor means! He promised to take it easy though. He's been back to the gym the past 2 days now and says he feels great.

The doctor had previously told Edward that he put him on a heart transplant list, just in case. He said he expects Edward will make a full recovery but just in case he doesn't, he didn't want to wait to put him on the transplant list because it's about an 18 month wait, and if he waited, and then put him on the list, basically it would be too late. Edward looked at me and said something like, "So if the medications don't work, I have to hope that someone else dies..." Such an awful thing to be faced with. Even though it was a "just in case" thing, we were more than a little rattled by that news, but are believing for his total recovery. Isaiah 53:5

The medications are helping, on the few days he's had a bit too much salt (he's only allowed 2000 mg and it adds up surprisingly fast), he feels it the next day, but the diuretic keeps the fluid draining so it doesn't build up. Although his blood pressure is perfect, they put him on blood pressure meds as well because they said it will make it easier for his heart to do its job. They also put him on potassium supplements because the diuretic apparently saps his body of potassium. So that's about it. I know God touched him, the Bible says a believer can lay hands on the sick and they'll recover, and that's exactly what took place. I'm looking forward to his next echo, whenever that may be, because I expect it to show he's fully recovered.

This has been one of the most difficult things I've ever faced, it was so hard not to panic. Edward said he believed he was going to die, I think he had given up when those three prayed with him. I'm so grateful they were there that day, and I'm so glad God heard their prayer and I'm so glad Edward is getting better. If you're a believer, please join your prayer to ours that Edward is healed.

He's got a lot of living yet to do :)]]> http://www.sidsfamilies.com/blog/index.php?entry=entry100228-002600
:(

Despite the problems I was having with my main mailboxes, I set up the 2009 Holiday of Angels address and managed to run that okay. I had to shake my head when I received SPAM in my HOA inbox within the first few days of having created the email address. There are some changes coming for the HOA next year which will hopefully solve the problem of people not receiving gifts. We're going to have a 1-way gift exchange for newly bereaved parents where they can opt to only receive a gift, and not send one in return. There's also going to be a card exchange for those who like sending cards. Plus the regular Holiday of Angels, with non-senders and those who received a gift but didn't sign the guestbook in previous years banned from participating. For those at Facebook, there's a group there for the Holiday of Angels. You can find it here: Holiday of Angels at Facebook

My husband works from home and has recently been considering changing to an office environment, and asked me if I'd like some space too so I could work on the site more efficiently, and so it would be easier to separate home life from what I do at SIDS Families. I think it would help and am hoping we're able to swing it. Our youngest will start school in the Fall too, so even if we can't get office space, that will help free up my time a bit.

We've come through Jacob's 11th birthday earlier this month. I was having a tough time, but am very grateful for the support I received from friends and family that day, it really helped take the sting out of a very sad day.

I had finished up one 2008 collage, but never got enough pictures to finish up the second one. There were too many to fit on just one collage, and it didn't seem fair to only put one out and disappoint a third of the families who had submitted a picture. I had hoped enough photos would have been submitted, but given fist the problems I had getting my mail, and now the mass deletion of my mail.. ugh. I'm so frustrated. I hadn't even begun to piece together a 2009 collage and now we're in 2010. Really *really* hoping for that office space so I can have some uninterrupted time to devote to all the SIDS Families things that need my attention. It's just gotten so hard to get anything done at home, the kids are always needing something, so the only quiet time I ever get is like last night - at 3 in the morning - and I just can't do that like I used to.

Back to my mail issues. I've deleted my jacobsmommy@sidsfamilies.com address. I've used it for 10 years, ever since I started the site, but it's nothing but spam these days, so at the very least, until I get caught up, that one is down for the count. In the meantime, I've set up a new mailbox, which I don't even want to put together because I know how quickly it'll be caught by spambots. You'll have to put it together, it's just "mailbox", and this domain - as in sidsfamilies.com. That's my new email address for now.

I'm still having FTP issues, I can't change any files on the website and it's beyond frustrating. I've been with the same host since I set up the site, they've changed names a couple times, but always the same people, but I may have to consider changing hosts. I just dread having to move things and get them working elsewhere, yet again.

I was without a computer for a couple months last fall too as it had to be repaired. The first shop fixed USB ports and the power issue, but fried everything inside the computer. The second place "fixed" all that, but my once fast computer now runs like a turtle. Sometimes it'll take, I kid you not (I've timed it) 20+ minutes to load a single web page. It will just suddenly choke, and of course, only adds to my frustration. *sigh*

I never would have imagined that the little site I started back in 1999 would get so big. It really is beyond my abilities to manage it all by myself. I've even been thinking of enlisting the help of my older, computer savvy kiddos.

:)

I have some personal news too, but I'll post that to another note.]]> http://www.sidsfamilies.com/blog/index.php?entry=entry091102-184916
So far I have received 64 forms, a smaller turnout than usual but that's likely due to how late everything is this year.

The main Holiday of Angels page is here. If you don't see The Sign Up Form in the list then the form's already been taken down for this year.



]]> http://www.sidsfamilies.com/blog/index.php?entry=entry091023-225834
Earlier this year, right around Jacob's angel day, the site went down. It had been completely deleted due to an issue over billing. I believed I had paid for the year and had a receipt for it, but for some reason unknown to me they never actually took the money off my card and I never noticed it hadn't gone through. I thought everything was good until renewal time but sometime in the spring they realized it was, in their thinking, "unpaid" and without warning or even the courtesy of a phone call, they simply deleted the entire website. I hadn't cried that hard in a long time. Edward phoned and phoned repeatedly and finally got someone on the phone who said he'd try to help. He was able to run some kind of program to retrieve what he could of the website from old server backups or something, I'm not exactly sure, all I know is he managed to get the babies back up. Edward had explained to him that this wasn't some commercial site, it was a site in memory of babies lost to SIDS. I'm not sure who that fellow was but he deserves major blessings for what he did!

Unfortunately, things didn't work properly, and still don't. Things are missing, lots of things. I think the nursery is intact, but lots of other things aren't. At first I couldn't even login via FTP which prevented me from doing anything for a long time. I tried to update on the blog about it, but it wouldn't post anything. I also had a problem with my computer, I only just got it back yesterday after a very long visit to the repair shop. I checked here and finally the blog is letting me post again. I can use their file manager to update things but still can't use FTP so it's really slow to do anything.

SO.. I'm really late getting the Holiday of Angels up and running and I'm trying to do that at the moment. Slow going because I have to use their file manager thinger, but better than nothing! (Much better! I've seen "nothing" and "nothing" wasn't nice!)

I had one collage finished for 2008 and was still waiting on enough babies to finish the second one when the site went down so I still have that to do, then the 2009 collage too.

I'm insanely far behind with nursery additions. I'm just grateful that the email groups are off-site because those didn't go down when the site did.

So that's a short-ish version update. I'll post again when I have the HOA forms ready to go.]]> http://www.sidsfamilies.com/blog/index.php?entry=entry090212-005618 page 148 in the nursery
Christopher Matthew Morrow
Theodore Douglas Lee-Staveley]]> http://www.sidsfamilies.com/blog/index.php?entry=entry090212-000150
I miss you little man, sending kisses to heaven!

mommy]]> http://www.sidsfamilies.com/blog/index.php?entry=entry090211-211211
Cooper Culling Campos
Brietta
Graysen Nicole Sousa
Steven Arnold Steven
Myah Brianne Schmidt
Caitlin Bailey Becker
Gabriel Lawrence Plourd
Kaileigh Pearl Joyce
Rachael Victoria Franks
Isaiah John Kiger
Brian Justin Ortiz
Tania R'nay Messina
Nancy Ann Ridaught
Scarlet Ebony Crouch
Niyelli Audrianna Yanez Nuevo
Mary Cooper Pitts
Alyssa Denise Davis
Yahira Jesenia Silva
Hayden Lynn Spivey
Lindy Aiyana Seward
Olivia Hope
Joseph Michael Morrison
]]>